Tuesday, September 23, 2008

CDKL5

If you would like to read futther information on CDKL5, please go to http://www.cdkl5.com/

5 comments:

Anonymous said...

my doughter elena, cdkl5 diagnosticated on may 2008, always cries too. From her born. Fortunatly some days laughts.. But j knew in italy only cdkl5 babies that never cry. j'd like to speak with you by mail if you want. My mail address is emydefranceschi@hotmail.com
xxx
emanuela

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Sherena said...

My daughter is 20 months old and she too has cdkl5. I am having a difficult time with her and it would be nice to connect with other parents going throught this same experience. my email address is sherenaward@gmail.com. I hope to hear from you.

chris said...

hello my name is Chris and i am friends with LilyAnna Blu and her momma Kim i just have to say i hope you girls fighting cdkl5 are some of the toughest little girls i have ever met!!!!!!!!!!!!!!